April 12, 2012
The third annual Wendy Walk to fund liposarcoma research will be held May 6 in Los Angeles and also in Miami and New York City.
Matt, Ali and Jackie Landes founded the Walk in 2010 for their mother, Palisadian Wendy Landes, who was diagnosed in 2008 with dedifferentiated liposarcoma.
Read more: http://www.palisadespost.com/news/content.php?id=7428
My son was diagnosed with Alveolar Rhabdohmyarsacoma In 2004 at the age of 3 which is an unsaluualy young age to develop it. He just had a small pea size lump in his foot and from then on it grew qhich the cancer ended up in his lymphatic system. I had never heard of this disease before and found that because i live in the uk only 60 children are diagnosed every year and i presume with their only being a small percentage that there would not be much research done. I allowed them to take a bit of the tumour and have it analysed just in case it can help other people in the future for research purposes. To late for us now but hopefully in time even a piece of my sons tumour will help them to figure out what treatments can be used to help others survive
Hi there all. Im cassie and i was dnigaosed wit rhabdo in Nov. 07 at the age of 19. I had a tumor in the roof of my mouth. I also found out at that time that i was 6 months pregnant with my baby boy. I had 3 surgerys, inbetween the 2nd-3rd i had a csection to have my son so i could start chemo right away. he is a healthy 3 yr old boy now. I went through 8 months of chemo. I have been in remission for almost 3 years now. I hope all is well and pray that all the kids affected by this disease is cured.
Oh how I wish we had events like this in England! Perhaps we do but sadly I am not aware of them!